List of Ehlers-Danlos Clinics on the East Coast

Ehlers-Danlos Syndrome (EDS) is a group of hereditary disorders affecting connective tissue, leading to symptoms ranging from joint hypermobility and skin fragility to chronic pain and systemic complications. Due to the complexity of EDS and its associated conditions—like Mast Cell Activation Syndrome (MCAS) and Postural Orthostatic Tachycardia Syndrome (POTS)—patients require specialized, multidisciplinary care. Below is a guide to some of the most notable clinics on the East Coast offering dedicated support for EDS patients.

‍

The EDS Clinic

The EDS Clinic is a leading resource for patients who may struggle to find local expertise. The clinic offers telehealth services in multiple states across the United States. The doctors specialize in diagnosing and treating EDS, MCAS, and POTS, using a remote care model that ensures accessibility for patients regardless of their location. The EDS Clinic has received excellent reviews from patients.

Center for Complex Conditions by Dr. Pradeep Chopra

Dr. Pradeep Chopra, a Harvard-trained specialist in Pain Medicine and an Assistant Professor (Clinical) at Brown Medical School, is a globally recognized expert in managing the chronic and complex pain associated with EDS and CRPS. Dr. Chopra emphasizes a multidisciplinary approach to care, addressing both physical and mental health challenges.

Link to the Center for Complex Conditions

The EDS Clinic at Mayo Clinic Jacksonville

The EDS Clinic at Mayo Clinic’s Jacksonville, Florida, campus provides expert evaluation and care for all forms of EDS, including hypermobile EDS, hypermobility spectrum disorders (HSD), and rare genetic types. With a multispecialty team that includes Clinical Genomics, Neurology, and Gastroenterology, the clinic creates personalized care plans tailored to each patient’s unique needs. Ongoing management is coordinated with local providers, ensuring seamless continuity of care.

Link to The Mayo EDS Clinic in Jacksonville

NYIT Ehlers-Danlos Syndrome/Hypermobility Treatment Center

Located at the New York Institute of Technology (NYIT) Academic Health Centers in Old Westbury and Central Islip, New York, the NYIT Ehlers-Danlos Syndrome/Hypermobility Treatment Center provides an extensive range of services tailored to the unique needs of EDS patients. The center’s multidisciplinary team offers primary care, cardiology, osteopathic manipulation, occupational therapy, and physical therapy. This comprehensive approach ensures that patients receive well-rounded care addressing both physical symptoms and systemic complications.

Mount Sinai South Nassau Chiari EDS Program

The Mount Sinai South Nassau Chiari EDS Program in Oceanside, New York, specializes in treating patients who experience both EDS and Chiari malformation. A team of multidisciplinary experts collaborates to provide targeted diagnostic and treatment services, ensuring that care plans address the complex interactions between these conditions. This focused program offers EDS patients relief through tailored interventions and a holistic approach to care.

Weill Cornell Medicine Division of Pain Management

At Weill Cornell Medicine in New York City, the Division of Pain Management provides advanced, customized treatment plans for EDS patients dealing with chronic pain. The clinic utilizes the latest research and cutting-edge technologies to develop individualized strategies aimed at improving quality of life. By addressing pain as a primary symptom, Weill Cornell Medicine’s specialists offer vital support to patients managing the long-term effects of EDS.

Conclusion

Patients with Ehlers-Danlos Syndrome often face unique challenges due to the condition’s complexity and variability. Fortunately, the East Coast is home to several top-tier clinics and medical centers that specialize in treating EDS and its associated conditions. Whether through in-person visits or telehealth options, these centers provide invaluable resources for improving patient outcomes and quality of life.

If you or a loved one is living with EDS, consider reaching out to one of these notable clinics for expert care and support.

‍