Ehlers-Danlos Syndrome Specialists in Florida

Ehlers-Danlos Syndrome (EDS) is increasingly recognized within the medical community as a genetic disorder that significantly impacts the body's connective tissues, which are crucial for providing support and elasticity to the skin, joints, and vascular structures. Despite its growing recognition and the frequency with which it is diagnosed, there remains a pronounced shortage of healthcare professionals who possess a deep understanding and expertise in diagnosing and managing EDS, as well as its related condition, Hypermobility Spectrum Disorder (HSD). This gap in specialist care is even more evident when considering the management of conditions commonly associated with EDS, such as Mast Cell Activation Syndrome (MCAS) and Postural Orthostatic Tachycardia Syndrome (POTS). These conditions require a thoughtful and well-informed treatment approach.

Many patients are often uncertain about which type of medical specialist is best equipped to address and manage their EDS. In our experience as patients, we have found that while medical specialization is indeed valuable, the individual healthcare provider's commitment to understanding EDS and their experience with the condition are more important. In Florida, as is the case in many other regions, EDS specialists are hard to find. Often, the most effective strategy for patients is to find a healthcare professional who is committed to working with you to understand the unique way that EDS presents in your body.

Finding a healthcare professional with the right mix of knowledge, empathy, and willingness to tackle the challenges of EDS head-on can be a daunting task, especially in areas where such specialists are scarce. However, the impact of establishing a collaborative and understanding patient-provider relationship cannot be overstated for those navigating the intricacies of living with EDS. Below, we are compiling a list of providers in Idaho who understand Ehlers Danlos Syndrome. Some of these providers are on our team, and some are part of separate clinics across Florida.

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EDS Specialists Serving Florida:

Teri Berry, DNP, FNP-C

Teri Berry is well versed in EDS and HSD, she works with The EDS Clinic to support patients in Nevada as well as many other states.

• Specialization: EDS, HSD, MCAS, POTS
• Location: Telehealth available across Florida
• Wait Time for Appointments:  1 month
• Website: Teri Berry's Profile

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Unfortunately, we don't know of many other providers who can diagnose and treat EDS and the co-occuring conditions in Florida, but if we find some, we will add them to this list.

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What kind of specialist diagnoses and treates Ehlers Danlos Syndrome?

Which medical specialists are qualified to diagnose and treat Ehlers-Danlos Syndrome (EDS)? For diagnostic accuracy, especially with Classical and Vascular types of EDS, genetic testing is often necessary to identify specific genetic mutations. Such genetic insights are crucial for developing targeted treatment plans and setting realistic expectations for both patients and healthcare providers. Nevertheless, it's crucial to note that a significant number of EDS cases, particularly those within the Hypermobility category, cannot be conclusively diagnosed through genetic testing alone. Diagnosing Hypermobility Type EDS and related Hypermobility Spectrum Disorders predominantly depends on a thorough clinical assessment and the diagnosing physician's expertise, underscoring the importance of a provider's clinical judgment in lieu of genetic evidence.

The nature of EDS and its accompanying conditions necessitates an integrated care approach, calling for the involvement of specialists across a range of medical disciplines, including but not limited to rheumatology, cardiology, immunology, and genetics. This collaborative approach ensures a holistic and comprehensive management strategy, tailored to address the diverse symptoms and complications encountered by individuals with EDS.

In summary, navigating the complexities of Ehlers-Danlos Syndrome and its associated conditions requires the involvement of deeply committed and experienced healthcare professionals. Individuals affected by EDS are advised to seek care from specialists who not only have a thorough understanding of the syndrome and its various manifestations but also demonstrate a profound dedication to appreciating and addressing the unique characteristics of each patient's condition.

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