Bestselling Children's Book shines light on EDS and Childhood

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In an inspiring collaboration that speaks volumes about love, resilience, and advocacy, local authors Pey Carter and her daughter, Abigail Bailey, have captured the hearts and minds of readers nationwide with their groundbreaking children’s book, "Bendy Bones and Stretchy Skin." The book, which chronicles Abigail's experiences living with Ehlers-Danlos Syndrome (EDS), soared to the top of Amazon’s bestseller lists after its release.

The narrative of "Bendy Bones and Stretchy Skin" is deeply personal, drawn from the daily realities of managing EDS—a condition both Pey and Abigail navigate. Through engaging storytelling and vibrant illustrations by Katarina Stevanovic, the book offers a window into the challenges and accommodations necessary for those living with invisible disabilities, while also championing the strength and determination of its protagonists.

Following a successful Kickstarter campaign that brought their vision to life, the Carter-Bailey duo celebrated their book's publication with community events, including signings and readings that fostered a deeper understanding of EDS and invisible illnesses at large. Notably, Abigail shared her journey with students in her school, illustrating the profound impact of peer support and education in building inclusive communities.

The book's success speaks to a broader need for diverse representations in children’s literature, particularly regarding disabilities and chronic illnesses that are often underrepresented. By sharing their story, Pey and Abigail are not only filling a critical gap in children's literature but also empowering others with similar experiences to feel seen and understood.

Looking ahead, Pey expressed a desire to continue exploring the lives of individuals with various disabilities through literature, highlighting the importance of visibility and understanding for all children. Their work is a testament to the power of storytelling in shaping compassionate, informed future generations.

As "Bendy Bones and Stretchy Skin" finds its place in homes and schools across the country, Pey and Abigail's efforts stand as a beacon of hope and solidarity for families navigating similar paths. Their message is clear: everyone's story deserves to be told, and through empathy and education, we can build a world that celebrates every individual's uniqueness.

For those interested in supporting or learning more about Pey and Abigail’s advocacy work, visit their website and follow their journey through social media. Their story is a powerful reminder of the impact of love, resilience, and the pursuit of understanding in the face of adversity.

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If you are interested in learning about other books that feature Ehlers-Danlos Syndrome, click here.

if you would like to see TV shows and movies that feature EDS, click here.