The Ehlers Danlos Clinic at Tulane University

In the realm of rare and complex conditions like Ehlers Danlos Syndrome (EDS), particularly its hypermobile type (hEDS), the quest for specialized care is paramount. Standing at the forefront of this journey is Tulane University’s innovative EDS Clinic, one of the first of its kind in the world. Before we get too far, I should note that www.EDS.clinic is not affiliated with Tulane's EDS clinic, but we have a lot of respect for what Dr. Courseault and his team have accomplshed. The Louisiana based EDS clinic at Tulane has set a precedent in the field of EDS treatment and research, offering a beacon of hope for those navigating the intricacies of this condition.

The inception of the EDS Clinic at Tulane University, under the guidance of sports medicine physician Dr. Jacques Courseault, marks a significant stride in addressing the multifaceted challenges of EDS. Dr. Courseault’s vision for a specialized clinic has been realized with a team that includes Kelli Morrell, ANP, and Julie Johnson, RN, who bring their nursing expertise to the forefront of patient care. The clinic is also strengthened by the skills of Andre Labbe, DPT, Director of Hypermobility Physical Therapy, whose knowledge in physical therapy is crucial for managing EDS symptoms. Clintt Meyers, as the Patient Navigator, plays a vital role in guiding patients through their care journey.

Unlike conventional medical practices, this clinic is tailored specifically for EDS patients, focusing on both the management of symptoms and a deeper understanding of the syndrome’s complexities. The multidisciplinary approach adopted here is not just innovative but necessary, considering the systemic nature of EDS.

What truly sets the Tulane EDS Clinic apart is its commitment to encompassing all aspects of EDS care. It not only offers treatment but also engages in vital research and education. A notable example of its research prowess is a recent study on folate-dependent hypermobility, which highlights the clinic's ongoing efforts to unravel the biological underpinnings of EDS and related conditions. This dual focus on patient care and research fosters a more comprehensive understanding of the condition, which in turn benefits the global EDS community.

The patient-centric philosophy at the core of the Tulane EDS Clinic is particularly noteworthy. Recognizing the often complex and misunderstood journey of those with EDS, the clinic provides care that extends beyond physical symptoms, addressing the psychological and social challenges associated with the condition. This holistic approach is reflective of a deeper understanding and empathy towards the EDS community.

In conclusion, the Ehlers Danlos Syndrome Clinic at Tulane University is not just a medical facility; it is a vital resource and a symbol of progress in the realm of EDS care. By intertwining expert medical treatment with groundbreaking research and education, it is paving a path towards a future where EDS is better understood, diagnosed, and managed.

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References:

1. Hypermobility Clinic. (n.d.). About. Tulane University. Retrieved from https://hypermobilityclinic.org/about/
2. Chronic Pain Partners. (n.d.). Folate-Dependent Hypermobility: Discussing Tulane's Recent Paper with Their Scientists. Retrieved from https://www.chronicpainpartners.com/folate-dependent-hypermobility-discussing-tulanes-recent-paper-with-their-scientists/

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