Diet and Nutrition for Hypermobility and EDS

‍Introduction

Nutrition plays a role in managing Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). However, finding a diet that works for each individual can be challenging, especially when dealing with co-morbidities like Mast Cell Activation Syndrome and gastrointestinal issues (e.g. Gastroparesis, gluten intolerance). The adage "You are what you eat" rings particularly true for those navigating EDS and hypermobility, where diet is not just about nourishment but a strategic approach to symptom management and enhancing quality of life.

This article aims to provide a starting point for understanding the dietary choices that help manage EDS and hypermobility symptoms.

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For a deep dive into how EDS affects digestion—from reflux to SIBO to nutrient deficiencies—read our full article on gastrointestinal involvement in EDS (here).

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The Challenge of a Suitable Diet in EDS and Hypermobility

Adapting your diet to manage EDS and hypermobility involves understanding the unique challenges posed by these conditions:

• Gastrointestinal Symptoms: Many with EDS and hypermobility experience symptoms like acid reflux, nausea, and poor appetite. These issues can hinder the ability to maintain adequate nutrition.
• Misinformation and Fad Diets: The abundance of unverified dietary advice can lead individuals down paths of unhelpful or harmful practices, often at a financial and health cost.
• Individual Variability: What works for one person might not work for another, making personalized dietary approaches essential.

Key Dietary Considerations for EDS and Hypermobility

When considering diet for EDS and hypermobility, several factors come into play:

• Managing IBS and GI Symptoms: A significant proportion of those with EDS experience IBS and other GI symptoms, necessitating a tailored approach to diet.
• Addressing Dyspepsia: Many with EDS experience dyspepsia, also known as indigestion, which can present as a belly pain or a sense of fullness in the stomach.
• Navigating POTS and Sodium Intake: Proper hydration and sodium intake are crucial for managing Postural Orthostatic Tachycardia Syndrome (POTS), a common comorbidity.
• Dealing with Mast Cell Activation Syndrome (MCAS): Dietary adjustments may be necessary to manage MCAS, including reducing high-histamine foods.

When a Specific Diet is Necessary

Certain conditions that coexistwith EDS and hypermobility may require specific dietary adjustments:

• Nutritional Deficiencies: Addressing deficiencies in vitamins D, B12, and iron may be helpful for alleviating symptoms like fatigue. Although supplements can play a role in managing EDS and hypermobility, it's essential to approach them with caution and under professional guidance.
• FODMAP Diet for GI Symptoms: The FODMAP diet, which involves eliminating certain carbohydrates (e.g. wheat), can be beneficial for those with GI symptoms.
• Hydration and Sodium for POTS Management: Increased hydration and sodium intake can help manage POTS symptoms.

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Avoiding Fad Diets and Unproven Treatments‍

Popular culture has created many fad diets that lack scientific research, and it's probably a good idea to steer clear of these fad diets and unproven treatments, such as the Cusack Protocol, which still lacks scientific backing.

Lifestyle Factors in EDS Management

Beyond diet, lifestyle factors like sleep, hydration, physical activity, and managing alcohol intake play significant roles in managing EDS and hypermobility symptoms.

Seeking Professional Advice

Navigating the dietary landscape for EDS and hypermobility requires collaboration with healthcare professionals, including dietitians and doctors, to ensure a comprehensive and individualized approach.

Conclusion

There is no one-size-fits-all "EDS diet." Instead, individuals with EDS and hypermobility should focus on a balanced, nutritious diet tailored to their unique needs, avoiding misinformation and fad diets. Professional guidance is key to making sustainable dietary choices that improve health and symptom management.