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Foot Health in Ehlers-Danlos Syndrome

Updated:
March 2024
by
David Harris

Ehlers-Danlos Syndrome (EDS), particularly the hypermobility type, presents a unique set of challenges when it comes to foot health. This complex condition affects not only the skin and joints but also the structural integrity of the feet, leading to a variety of symptoms and complications that can significantly impact mobility and quality of life.

Understanding the Foot's Structure

The human foot is a marvel of engineering, comprising 26 bones, over 30 joints, and more than 100 muscles, tendons, and ligaments. These elements work in harmony to support the body's weight, absorb shock, and propel us forward with each step. The foot's ability to switch between flexibility for shock absorption and rigidity for propulsion is crucial to its function. However, this balance can be disrupted by conditions that affect joint mobility, such as EDS.

The Unique Foot Challenges in EDS

Individuals with hypermobile EDS often experience altered joint function, leading to changes in how foot joints work together. This can result in low-arched or flat feet, although not universally. Paradoxically, some may develop high-arched feet, adding to the complexity of the condition. Issues like skin calluses, tendon contractures, and scar tissue problems further complicate foot health in EDS.

Ankle and foot hypermobility is a common symptom, affecting a significant portion of adults with EDS. This hypermobility can lead to increased strain on joints and soft tissues, worsening foot problems. Common issues include tendon damage, muscle sprains and strains, and plantar fasciitis, often more severe than in individuals without hypermobility.

The Role of Proper Footwear and Orthotics

Addressing foot problems in EDS involves a multifaceted approach. Proper footwear plays a crucial role, offering stability and support to hypermobile ankles and feet. Shoes with a strong heel counter, robust upper, and cushioned midsole can significantly improve foot function and reduce pain. Additionally, foot orthoses, custom-made or off-the-shelf, can help stabilize the foot, limit excessive joint motion, and redistribute forces to alleviate pain.

Strengthening and Stretching Exercises

While the foot's small muscles and the large forces acting upon them limit the effectiveness of exercises, certain activities can still provide benefits. Barefoot walking, when safe, and exercises like tiptoe standing can strengthen foot muscles. Stretching exercises for the calf, hamstrings, and arch area may also offer relief, especially if performed under the guidance of a healthcare professional familiar with EDS.

The Importance of Comprehensive Care

Due to the complexity of EDS, a team approach to foot care is essential. Podiatrists can assess gait, joint strength, and function, prescribing orthotics or braces to support the feet and reduce harmful movements. These interventions, combined with balance improvement and pain reduction techniques, can enhance overall foot health and functionality.

Conclusion

Footcare in Ehlers-Danlos Syndrome demands attention to detail and a personalized approach. While challenges abound, with the right combination of supportive footwear, custom orthotics, and targeted exercises, individuals with EDS can achieve improved foot health. It's important for those affected to seek advice from healthcare professionals who understand the nuances of EDS, ensuring that treatment plans are tailored to their specific needs and lifestyles. Empowerment through education and professional support can lead to better management of foot health, allowing individuals with EDS to lead more active and fulfilling lives.

Sources:
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  3. Ehlers-Danlos Support UK. (2016, May 1). Footcare in Hypermobile Ehlers-Danlos Syndrome. Retrieved from https://www.ehlers-danlos.org/information/footcare-in-hypermobile-ehlers-danlos-syndrome/
  4. Vermeulen, S., De Mits, S., De Ridder, R., Calders, P., De Schepper, J., Malfait, F., & Rombaut, L. (2020). Altered Multisegment Ankle and Foot Kinematics During Gait in Patients With Hypermobile Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder: A Case–Control Study. Arthritis Care & Research. https://doi.org/10.1002/acr.24526
  5. Pau, M., Galli, M., Celletti, C., Morico, G., Leban, B., Albertini, G., & Camerota, F. (2013). Plantar pressure patterns in women affected by Ehlers–Danlos syndrome while standing and walking. https://doi.org/10.1016/j.gaitpost.2013.07.130
  6. Jeong, H.-J., Engel, J. M., Muriello, M., Basel, D., & Slavens, B. A. (2024). The association of pain with gait spatiotemporal parameters in children with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder. Gait & Posture. https://doi.org/10.1016/j.gaitpost.2024.02.007
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