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The EDS Clinic joins the Centers and Networks of Excellence program

Updated:
August 2024
by
David Harris

The EDS Clinic is now part of the Ehlers-Danlos Society Centers of Excellence Program!

We are thrilled to announce that The EDS Clinic has been accepted into the prestigious Ehlers Danlos Society Centers and Networks of Excellence program! This recognition is a testament to our dedication to providing exceptional care and support to individuals living with Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD).

About the Centers of Excellence Program

The Ehlers Danlos Society Centers of Excellence program identifies and collaborates with clinics and hospitals that demonstrate excellence in the care, research, and education of EDS and HSD. Being part of this network means our Ehlers-Danlos clinic meets the highest standards of patient care and is committed to advancing the understanding and treatment of these complex disorders.

What This Means for Our Patients

Comprehensive Care: As a Center of Excellence, we offer multidisciplinary care for Ehlers-Danlos syndrome that addresses the wide range of symptoms and challenges associated with EDS and HSD. Our team includes specialists in a variety of disciplines to ensure holistic and coordinated treatment plans.

Cutting-Edge Research: Our inclusion in this program allows us to participate in leading-edge research initiatives aimed at discovering new treatments and improving patient outcomes. Our patients will have access to clinical trials and the latest advancements in EDS and HSD care. This commitment positions us among the best doctors for Ehlers-Danlos syndrome, providing innovative and comprehensive solutions for our patients.

Education and Advocacy: We are committed to educating our patients, their families, and the wider community about EDS and HSD. Through workshops, support groups, and educational materials, we aim to empower our patients with the knowledge they need to manage their conditions effectively. This includes providing detailed information on treatment options available at our Ehlers-Danlos treatment centers.

A Commitment to Excellence

The Centers of Excellence program is built on the C.A.R.E. model:

  • Care: Providing exceptional, patient-centered, and multidisciplinary care.
  • Access: Ensuring all patients have access to specialized EDS/HSD healthcare, including telehealth and disability-friendly facilities.
  • Research: Contributing to and facilitating research in EDS/HSD to advance treatment options and patient care.
  • Education: Committing to continuous education for healthcare professionals and the community through programs like Project ECHO.

Mission and Designation

The Ehlers Danlos Society is committed to increasing the availability of clinical services for people living with Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders, decreasing the diagnostic odyssey, and standardizing communication and care. Our clinic joins a network of Centers of Excellence that spans 11 countries, representing a wealth of expertise in various areas of care delivery. This global network includes top Ehlers-Danlos clinics and EDS specialists.

Our acceptance into the Centers of Excellence program reflects our unwavering commitment to providing the highest quality care to our patients. We are honored to join this network of esteemed institutions and look forward to continuing to serve our community with the excellence and compassion that define our practice.

Thank you for being part of our journey. We look forward to achieving new milestones together and making a positive impact on the lives of those living with EDS and HSD.

Stay tuned for more updates and information about our participation in the Ehlers Danlos Society Centers of Excellence program!

For more details about the program, visit the Ehlers Danlos Society Centers of Excellence program information page.

Visit our website for more information: www.EDS.clinic.

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